Breaking Barriers: Making Healthcare Accessible for Neurodivergent People
Accessing healthcare can be challenging for neurodivergent people due to systemic barriers and a lack of understanding within services. To explore ways to address these challenges, we asked the ND Perspective Community:
“How can we make healthcare more accessible for neurodivergent people?”
Their responses offer valuable insights into the changes needed to create inclusive, effective, and compassionate healthcare for all.
Increasing Understanding in Healthcare Settings
One of the most pressing issues raised was the lack of understanding about neurodivergence in healthcare. Mental health and crisis teams often lack training in how conditions like autism and ADHD impact patients’ needs. Treatments and action plans are frequently designed for neurotypical patients, leaving neurodivergent people unable to engage effectively. This can lead to harmful outcomes, such as being discharged during a crisis due to perceived "non-engagement".
Given the higher rates of suicide among autistic people, this approach is not just inappropriate—it’s dangerous. The community suggested implementing mandatory training, such as the Oliver McGowan training and the continued rollout of the National Autism Training Programme (NATP), to equip healthcare professionals with the knowledge to adapt their approaches.
Learning from Neurodivergent Employees in Healthcare
The healthcare sector employs many neurodivergent staff whose lived experience could offer invaluable insights. These employees are uniquely positioned to inform policies, training, and practices. Involving neurodivergent healthcare professionals in developing inclusive practices could help bridge the gap between theory and real-world care.
Training for GPs and Community-Based Solutions
GPs are often the first point of contact for neurodivergent patients, yet many lack the training to identify and advocate for their needs. Targeted training for GPs could ensure earlier interventions and more tailored support. Additionally, the shift from hospital-based care to community treatment could be beneficial, provided community services are designed with accessibility and inclusivity in mind.
Removing Stigma and Assumptions
The ND Perspective Community highlighted the harmful impact of stigma and assumptions in healthcare. Many neurodivergent people remain undiagnosed, often due to a lack of recognition or support in early life. As a result, when they seek healthcare, particularly in times of crisis, their needs are frequently misunderstood or dismissed.
One community member shared an example of a woman in crisis who was referred to A&E. Poor communication and a lack of understanding led to inappropriate follow-up, leaving her more vulnerable than before. This story underscores the need for crisis services that respect neurodivergent needs, such as allowing trusted supporters to attend assessments and ensuring proper communication and care pathways.
Improving Support for Domestic Abuse Survivors
Another important issue raised was the lack of accessible support for domestic abuse survivors. Current resources often cater to traditional social norms, failing to account for the unique dynamics of neurodivergent households. For instance, while free rail travel for domestic abuse survivors is a valuable initiative, it assumes a conventional understanding of abuse that may not align with the experiences of neurodivergent people. Adapting these services to be more inclusive could provide life-saving support for those in need.
Flexible and Clear Communication
Flexibility and clarity in communication were key recommendations from the community. Neurodivergent patients benefit from multiple ways to access care, such as written, verbal, or virtual methods, as well as clear and specific directions. Healthcare providers must also respect accommodations, like hidden disability lanyards, and prioritise creating supportive environments.
The Path Forward
The ND Perspective Community’s responses make it clear: systemic change is needed to make healthcare accessible for neurodivergent people. From improving training and drawing on the insights of neurodivergent employees to designing inclusive and adaptable services, every step matters. By fostering understanding, eliminating stigma, and prioritising flexibility, healthcare systems can ensure that neurodivergent patients receive the care and respect they deserve.